Emily Writes & Eddie

Emily Writes reaches out to other parents of children with type 1.

"I want to tell those new to the club that it will change every day. That it’s no straight line. I want to tell them that our family is a marching band now, falling into a beat. Starting to know exactly what to do. Hate this tune but getting to know it in our bones. We mess up, but are back on track immediately. No room to dwell on mistakes, we keep in step.

I want them to know that in the blink of an eye I cry and cry and cry – still. At the injustice of it all.

They say it gets better and it does and it doesn’t. Some days it’s all second nature and you just do it like brushing your teeth. Other days he says, “I don’t want to die” and you’re bowled over, king hit. You’re back there in the bathroom at the hospital face pressed against the wall, trying to breathe. Just breathe."

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